Lichen planopilaris, an autoimmune disease of the skin.
This post is from 3 years ago from a blog I used to maintain with focus on spirituality. The reason I am reposting a portion of it here, is that lately it has been getting a lot of interest and I wanted to make sure that readers who have contacted me about LP – Lichen planus (body) and LPP – Lichen planopilaris (scalp) disorders, as well as other skin or autoimmune disorders, can easily access the info.
Posted on July , 2010
… I have a skin condition – Lichen planus (body) and Lichen planopilaris (scalp). According to my doctors, it is not exactly known why it appears, it is not uncommon, not contagious and not treatable. It just sits there until it runs it’s course and goes away on its own within a year or two only to come back at some point later and on/off again. If itchy I must cover myself in a layer of hydro-cortisone cream twice daily – I did not, as my rash is not bothering me at all, not itchy, and call me silly, but I have a little problem applying cortisone all over my body for an indefinite length of time.
On scalp it is a bit more problematic, as one may permanently loose hair if scarring occurs in the affected area. Well the “treatment” is a steroid cream to merely keep it under control. But doctors can not guarantee that it will in fact stop anything from spreading. Like I said above, according to conventional medicine (4 different doctors), there is no treatment. However I believe that with this rash my body is trying to tell me something and I do not believe that it is possible for something like that to just appear for no good reason. So I am determined to find out what caused it and how to live with it.
And this is a rather large thread of comment and my replies that may be helpful for readers interested in this particular disorder.
I was diagnosed with lichen planopilaris a week ago after a biopsy. The only symptoms I have are some hair shedding and some itching a few months ago. However, when the dermatologist diagnosed me with the issue, she put 15 needles with anti-inflammatory in my head and prescribed me cortizone cream to apply 4 times a week. Well, after the shots were administered, my head started itching and burning! It got worse when I applied…therefore I stopped.
I can’t seem to see any signs of it on my head, such as bumps. Can you see anything on your head?
You mentioned that it goes away on its own. If this is so, I hope I have hair left when it goes away! I am thinking about starting a nutritional program called Nutritional Balancing. It is conducted through a hair sample analysis and you take supplements based on what your body is deficient in or what kind of toxins you need to get out of your system. What are your thoughts around this. It’s really nice to find someone else with this condition.
I look forward to hearing from you.
If any new comments are posted from now on, all the info will be here in one place.
To your health.